‘The role of ethnicity in end-of-life care in care homes for older people in the UK: a literature review’

Frances Badger MSc BSc RN RM1*, Rachel Pumphrey BA2, Laura Clarke MSc BSc3, Collette Clifford PhD MSc DANS RN4, Paramjit Gill DM PRCGP FHEA5 and Sheila Greenfield PhD PGCE MA BSc6, Angela Knight Jackson MPhil MSc BA(Hons) RHV RM RSCN RN7

Abstract

Care homes for older people are major providers of end-of-life
care – that is, care during the last years of life. There are over half a
million deaths a year in the UK, the vast majority occurring among
older  people, and one in five members of the population dies in a care
home. Ensuring the provision of high quality end-of-life care in care
homes for older people is an important healthcare issue, and has
recently been scrutinized as part of an overall review of end-of-life
care in the UK. It is acknowledged that little is known either about the
numbers of people from black and minority ethnic groups who
are resident in care homes, or about the extent to which their
end-of-life care needs are addressed in line with their specific
requirements. This paper summarizes the current research evidence on
cultural issues relating to ethnicity in end-of-life care in care homes,
identifying the need for both monitoring and research data on the
experiences and perspectives of residents from black and ethnic
minorities, and their family carers

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